Yesterday I had my nuero appt.
No "bad" news but it sure wasn't good news. Nuero believes my latest issues aren't a flare up - that's good - but he does think they are just a "progression" of my MS symptom - not good! To be sure he is sending me for a new MRI to check if there is any new "activity" and he put me on steroid for a week to help reduce any inflammation that "might" be there causing the issues.
Not to bad but now we have to fight with my insurance to get them to cover the MRI. Otherwise it's going to be my full deductible out of pocket for this. Hopefully they will be receptive this time.
Anyone have experience with insurance companies and how to work with them to get this covered?
Showing posts with label MS. Show all posts
Showing posts with label MS. Show all posts
Tuesday, May 25, 2010
Monday, May 24, 2010
Off to the Nuero
All right everyone wish me luck - I'm off to the neurologist. Hopefully nothing big going on! Fingers crossed!
Monday, May 17, 2010
Me meet Brick-wall - Brick-wall meet me
Well it is official me and the brick-wall have become very closely acquainted as of recently. If I do anything "out of the ordinary" my body yells and screams at me. We went to a baseball game Saturday evening then went to a visit a friend who just had a baby last week on Sunday, so I didn't get the chance to do "nothing" all weekend and recoup from my week and boy am I paying for it.
I have an appt. with my nuero next week and hopefully he can do something to help me with these ongoing symptoms. I'd cross my fingers but even my hands hurt to much for something like that.
I have an appt. with my nuero next week and hopefully he can do something to help me with these ongoing symptoms. I'd cross my fingers but even my hands hurt to much for something like that.
Tuesday, May 11, 2010
Need a trip to the nuero.
I give in, it's time to make an appt. with my nuero. I've been putting it off for months now since my insurance changed and I've been feeling fine. But no more procrastinating. I am getting the occasional "dancing lights" in my field of vision. Not good. Probably means a new lesion, not good at all. Also probably means time for an new MRI. Very not good on the pocket book. Oh well got to do what I got to do to keep my self in decent condition.
Monday, May 10, 2010
MS Walk Update and Happy Mothers Day!
I know I'm a day late and a dollar short but a Very Happy Mother's Day to all you Moms out there. I hope you had a great day.
We had a very nice day! We went out to a yummy brunch at Station 885 in Old Town Plymouth. So good! The spread was great! They had everything from made to order omelets to french toast to lasagna to smoked salmon to a whole table of drool worthy desserts and much much more. The atmosphere was perfect! Even though it was busy and every table was full it didn't seem like it. They staggered the reservations perfectly! Very enjoyable time!
Saturday was was Walk MS at Comerica Park in Detroit. Even though it was windy and cold overall we had a good time.
My team did great! Team Sweet Tater raised over $1,700! Way to go!
The day itself left much to be desired in the weather category. Any way you cut it 30 mph gusting winds and 44 degrees are not ideal conditions to walk down your own block let alone walk 3 miles in the heart of downtown!
Colin was with me for the walk and he really did not appreciate the wind. We came around a corner and the wind hit him square in the face and that was it. He cried the whole rest of the walk. 2 miles later with a screaming child and aching body I managed to finish the walk! It was a struggle but I did it! Every last step!
I'm very proud of myself but today I am paying for it! My body is not happy with me. Oh well some pain killers and off to bed early for me tonight!
We had a very nice day! We went out to a yummy brunch at Station 885 in Old Town Plymouth. So good! The spread was great! They had everything from made to order omelets to french toast to lasagna to smoked salmon to a whole table of drool worthy desserts and much much more. The atmosphere was perfect! Even though it was busy and every table was full it didn't seem like it. They staggered the reservations perfectly! Very enjoyable time!
Saturday was was Walk MS at Comerica Park in Detroit. Even though it was windy and cold overall we had a good time.
My team did great! Team Sweet Tater raised over $1,700! Way to go!
The day itself left much to be desired in the weather category. Any way you cut it 30 mph gusting winds and 44 degrees are not ideal conditions to walk down your own block let alone walk 3 miles in the heart of downtown!
Colin was with me for the walk and he really did not appreciate the wind. We came around a corner and the wind hit him square in the face and that was it. He cried the whole rest of the walk. 2 miles later with a screaming child and aching body I managed to finish the walk! It was a struggle but I did it! Every last step!
I'm very proud of myself but today I am paying for it! My body is not happy with me. Oh well some pain killers and off to bed early for me tonight!
Friday, May 7, 2010
Reached our team goal flat on my ass!
Well my team has reached its goal for Walk MS tomorrow and went sprinting right on pass!!
But I've been flat on my ass for the last two days. MS-onster has reared its head and happily put me there. I have been so tired and sore I've had to fight to get up in the mornings, which isn't normal.
And my adorable son hasn't been helping much. 2 nights ago Colin decided that 4 hours after he went to bed , right around 11:15pm would be the perfect time to wake mommy and daddy up so he could play. Almost 2 hours later after much pleading and bribing (which unfortunately doesn't work yet) and a good amount of tears from both him and me we managed to get everyone back to bed. That morning 5am came much to fast!
So just trying to keep myself together for tomorrow to make it through the walk!
7CWEXC5ESJFK
But I've been flat on my ass for the last two days. MS-onster has reared its head and happily put me there. I have been so tired and sore I've had to fight to get up in the mornings, which isn't normal.
And my adorable son hasn't been helping much. 2 nights ago Colin decided that 4 hours after he went to bed , right around 11:15pm would be the perfect time to wake mommy and daddy up so he could play. Almost 2 hours later after much pleading and bribing (which unfortunately doesn't work yet) and a good amount of tears from both him and me we managed to get everyone back to bed. That morning 5am came much to fast!
So just trying to keep myself together for tomorrow to make it through the walk!
7CWEXC5ESJFK
Thursday, May 6, 2010
MS Walk!!!!!!!!!!
This weekend is the MS Walk!!!!!!!!
This year has been great ... so far ...
I've raised more money than ever and so has my team. The shirts I made for the team came out great. The new tennies I got are super comfy.
Everything is great, right? WRONG!!!!!!
Lets see - the weather forecast - rainy windy and freaking cold. No not just a cold spring day, we're talking end of winter cold!! Then there is mom-in-law - she screwed up her ankle big time and instead of sitting out the walk she wants someone to push her in a wheelchair the whole route. Oh and did I mention that she wants me to find her a wheelchair to borrow for the day. Hmm - let me get right on that.
So to sum it up - a 3 mile walk on a cold miserable rainy day with my 14 month old son in his stroller and mom-in-law in a wheelchair that I am suppose to make magically appear. Hmm not sounding quite as enjoyable as I hoped.
Oh well - got to roll with it! We raised a lot of money for a great organization. There will be a lot of great people there. And best of all I'm still able to actually walk the walk!
This year has been great ... so far ...
I've raised more money than ever and so has my team. The shirts I made for the team came out great. The new tennies I got are super comfy.
Everything is great, right? WRONG!!!!!!
Lets see - the weather forecast - rainy windy and freaking cold. No not just a cold spring day, we're talking end of winter cold!! Then there is mom-in-law - she screwed up her ankle big time and instead of sitting out the walk she wants someone to push her in a wheelchair the whole route. Oh and did I mention that she wants me to find her a wheelchair to borrow for the day. Hmm - let me get right on that.
So to sum it up - a 3 mile walk on a cold miserable rainy day with my 14 month old son in his stroller and mom-in-law in a wheelchair that I am suppose to make magically appear. Hmm not sounding quite as enjoyable as I hoped.
Oh well - got to roll with it! We raised a lot of money for a great organization. There will be a lot of great people there. And best of all I'm still able to actually walk the walk!
Tuesday, May 4, 2010
Welcome to my blog!
I have decided to start this blog to share the joys and struggles I experience being a mommy with MS (Multiple Sclerosis).
The Background:
In August 2006 I woke up one morning to find my pinkie finger and my ring finger on my left hand numb. I blew it off to sleeping funny and didn't think about it. But then it continued for several days eventually progressing to the point my hand and left arm from my elbow down was numb.
I went to see my regular doctor who ruled out a pinched nerve and all the basic things that would cause something like this to happen. So now on to a specialist to try to figure it out. I thought he was going to say an orthopedic specialist or something along those lines but nope - off to a neurologist for me.
After several test in the nueros office he sent me for an MRI. In under 48 hours since my MRI I received the call that would change my life - it was the nuero telling me I have MS. Talk about devastating! We went in the office the next day to go over everything and what this meant and what my steps were.
First we had to get the current "flare up" I was having under control. That meant 3 days of high dosage steroids via IV, followed up by another ten days of oral steroids. While that got me the majority of the feeling back in my arm, the first 2 fingers that went numb are still that way.
After that I started on my disease modifying drugs which means I get to inject myself everyday for the rest of my life (unless by some miracle a cure is found in my lifetime).
I have now been on my meds for 3 and a half years and luckily have only suffered minor "flare ups" since my main one. I still live with the other issues that come from MS daily, including major fatigue, digestive issues, and memory issues.
The Cast in this crazy journey:
Me: Nikki
A late 20 something with MS. Mommy, wife, worker-bee, and one sarcastic bi... I mean brat!
The Husband: Mike
My supporter, both emotionally and sometimes literally. A great father. And a man of incredible patience - he has to be if he married me.
The Son: Colin
14 month old mister independent!
The Supporting Characters:
The Cats: Max and Loin
More commonly called idiot and dumbass. But we love them.
The Mother-In-Law
An awesome women who is there for what ever we could need who fights her own demon of Fibromyalgia.
My Mom
She did always teach me if you have nothing nice to say don't say anything.
...
Bosses 1 and 2
Umm well ...
And others to be introduced at a later date!
The Background:
In August 2006 I woke up one morning to find my pinkie finger and my ring finger on my left hand numb. I blew it off to sleeping funny and didn't think about it. But then it continued for several days eventually progressing to the point my hand and left arm from my elbow down was numb.
I went to see my regular doctor who ruled out a pinched nerve and all the basic things that would cause something like this to happen. So now on to a specialist to try to figure it out. I thought he was going to say an orthopedic specialist or something along those lines but nope - off to a neurologist for me.
After several test in the nueros office he sent me for an MRI. In under 48 hours since my MRI I received the call that would change my life - it was the nuero telling me I have MS. Talk about devastating! We went in the office the next day to go over everything and what this meant and what my steps were.
First we had to get the current "flare up" I was having under control. That meant 3 days of high dosage steroids via IV, followed up by another ten days of oral steroids. While that got me the majority of the feeling back in my arm, the first 2 fingers that went numb are still that way.
After that I started on my disease modifying drugs which means I get to inject myself everyday for the rest of my life (unless by some miracle a cure is found in my lifetime).
I have now been on my meds for 3 and a half years and luckily have only suffered minor "flare ups" since my main one. I still live with the other issues that come from MS daily, including major fatigue, digestive issues, and memory issues.
The Cast in this crazy journey:
Me: Nikki
A late 20 something with MS. Mommy, wife, worker-bee, and one sarcastic bi... I mean brat!
The Husband: Mike
My supporter, both emotionally and sometimes literally. A great father. And a man of incredible patience - he has to be if he married me.
The Son: Colin
14 month old mister independent!
The Supporting Characters:
The Cats: Max and Loin
More commonly called idiot and dumbass. But we love them.
The Mother-In-Law
An awesome women who is there for what ever we could need who fights her own demon of Fibromyalgia.
My Mom
She did always teach me if you have nothing nice to say don't say anything.
...
Bosses 1 and 2
Umm well ...
And others to be introduced at a later date!
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